Tuesday, October 28, 2008

Taking the first step: preparing mentally to walk to work

Everyone knows now: exercise helps, NOT hinders fibro. The tricks are: 1. to get started despite the pain you are presently in (it's a big hurdle), 2. to endure the pain that follows the startup, 3. and to keep motivated enough to exercise continuously on a long-term basis. Finally, there's the mental preparation that precedes any significant change in behaviour and living patterns.

When I began working full time, after a two- year absence following diagnosis, I found it difficult to manage the pain in my body from fibromyalgia and the work requirements of sitting at a computer all day. To continue working, it became clear, I would have to exercise several times a week. The challenge I faced was the fatigue that came with this illness, combined with my mothering responsibilites, made it difficult to plan a trip to the gym in the evening. So, I set the goal of integrating exercise into my work day.

The system of integrated exercise that worked best for me was walking to work. This self-motivated pain management approach was integrated gradually into my life with very positive results. I could not have done it with the wonderful help of a walking buddy. My walking buddy was retired and she loved exercise, was a wonderful conversationalist, and was an all round delightful and intelligent person, who told wonderful stories. Julie also did not have fibro, which meant the conversation did not centre on the illness. This created a light, positive, and pain-distracting atmosphere.

Walking to work did not happen overnight. For several years I sat on the bus and looked out and wondered what it would be like to walk on the same route the bus took. Since the route went through a wide open field and industrial buildings, with no windbreak during minus forty degree winter days, it did not look appealing. It was only after I found a new bus route and saw a more visually appealing route, with wide pedestrian walkways and green vistas that I began to plan my gradual shift from bus riding to walking.

Raising Self-Awareness: reflections on pain and narcissim

Let's repeat what the latest research states: exercise is good for fibromyalgia. It's just that it is challenging and the results can lead to excessive, if legitimate, complaints.

Last night I attended my fourth yoga class of the season. After I returned home I laid on the couch under a blanket, my husband placed a hot water bottle under the back of my thighs, a heated barley bag under my neck, and a cold pack on one shoulder. I read a book for two hours till bedtime, as the pain rose sharply and spread throughout my body. At 11:30 I took two Tylenol Three tablets and went to bed with two hot pads. At 2 am, I awoke because the intensity of the pain had again risen throughout my body. At 2:30 I awoke and my husband refreshed a hot water bottle. I tried to sleep, but the pain was too intense. At 3 am I rose and began to write this blog entry and took two more tablets.



People, who endure a great deal of pain each day, sometimes have difficulty shifting their attention to other people. Fibromyalgia sufferers, myself included, tell their stories to others over and over again, partially because the level of pain they live with everyday surprises them. "Pinch me, this can't be happening to me," becomes an insistent inner mantra that can lead to excessive discussion of their physical condition with anyone who is willing to listen.

Just remember fibro people: your listeners may not know that you are just reaching out for understanding. After a little while, pain-centred discussions puts others off and leaves fibromyalgiaers even more isolated. The reason your listeners are repelled is because you are exhibiting narcissistic behaviour through self-focused conversations.

Our complaints may be legitimate but they are best kept for intimate friends and professional therapy sessions. Disclosure and accommodation does not mean we are free to deluge and overwhelm others with our inner struggle.


Focusing our attention to others has the benefit of providing some pain relief, because it is distracting. It is also an opportunity to realize what is the greatest gift of fibromyalgia: compassion for other people. Pain can lead to hopelessness and despair or it can lead to insight and compassion. Understanding the suffering of others is a great gift. Giving back to the world understanding of suffering rather than narcissistic conversation can help us in other ways as well. It opens up our social world and means we can support others in their personal journeys and legitimately rejoice in contributing positively to our communities.

Get up and Go

Having survived a day of yoga recovery, which entailed sleep, chills, hot baths, hot packs and tylenol three every four hours, I went to work in the evening for three hours and pretended nothing had happened.

Today I start anew. I hadn't been feeling motivated to walk. In past years, I started programs with me, myself, and I, but now I want company. Last week I called a neighbour who works at home and she agreed to walk on Tuesday at 8:30 am. Since Tai Chi and Yoga, my two other activites are not aerobic, walking should provide a good balance.

I woke at 7 and by 7:30 was dressed and sat sipping my morning tea. At 8 am Ruth calls and ask if we should walk at 1 pm because of heavy rain. I had read the Environment Canada website posting but hadn't looked outside for a reality check. I took her word for it though and felt a bit down not to start pronto as planned. This disruption soon turns out to be for the best. Within half an hour my muscles are screaming with pain and I weakly ask my husband if he could run me a bath. I slowly head for the tub and try to stay submerged for thirty minutes in warm water with Epsom salts. After I dress and head back to the living room couch (my usual recovery centre) I feel so weak that I can barely put the two throws over my exercise pants.

To avoid feeling useless and the sense that my day is off to a poor start, I decide to do some phoning concerning various household needs. Robert hands me the phone and he also fills up a hot water bottle which he places under my thighs and heats a bean bag in the microwave, which he places under my shoulders, before he leaves for the day. I phone Primus about a name change in the phone book and I call the eye doctor to make an appointment. I read for distraction and drift off to sleep.

By 11:30 I awake, the pain has resided and I eat lunch and prepare to go walking. Ruth probably weighs less than me but she walks just as as slowly and she is wheezing when we go uphill, which concerns me. I hope walking will help her health and improve her breathing and I am happy to be a part of the solution. She's a wonderful conversationalist and is very cheerful and the time goes quickly. At the forty minute mark, my muscles feel very tight and I let her know I will stop in five minutes, so we end at my house, having visited a beautiful park, and several neightbourhood streets. I arrive back home refreshed and my muscles are tingling, which means they have been used, in a good way.

I make a green smoothie of 2 cups of baby spinach leaves, 1 cup of water ,and one half a banana. It's delicious! And I am so pleased that I finally had some get up and go and that my exercise program is still ON TRACK, despite the delays.

Seasonal Cycles and Pain Management

Its late October, in fact, it is almost Halloween. On my street there are pumpkins on the porches and the leaves of red and yellow lie underneath half bare maple trees, the sky is turning dark by 6:30, and when they leave home in the early morning, my neighbours are donning their hats and their gloves .

For friends with fibromayagia, the onset of colder weather can mean an increase in pain levels and stiffness. Fibro people may also suffer from SAD, or from their normal ongoing reality of "stage-four deprived sleep. Either reality can produce sad and depressive mental and emotional states, as seratonin in their brains wanes.

Each year at this time I feel like giving up on life and then I remember! I feel this way every year beginning sometime between late September, mid October--it's seasonal and its cyclical. It took me a few years before I identified the patterns associated with climate change, but as many fibroites can testify, season changes in symptoms are a fact of life. Seasonal changes should also be a factor in your pain managment plan.

Plan for more time to get from place to place, put aside monthly more money for gas, or if you've stop driving because of fibromyalgia, for taxis or public transportation. Don't be afraid to say no or to say maybe.

Tell friends. Be up front when you accept an invitation. Inform your hosts of your condition and let them know that attending may depend on obtaining transportation to and from, and the weather outside. If the weather suddenly turns cold and you're writhing in pain on your couch covered in hot packs, call them and let them know you are experiencing a flare-up and you would like a rain check.

Be careful: avoid isolation, because you feel you can't perform on the same level as others. Its true! You will perform in a different way than your able-bodied friends, but the best antidote for depression is to stay physically active and maintain your social connections. Here are a few suggestions to stay in touch with other people in the difficult winter months. Invite your friends to come over with minimal effort and fuss. Have a movie and popcorn or if it is the night and must include dinner, order out or heat up a store bought chicken pie and serve with store bought field greens or play pot luck and take it easy. Remember, don't make your illness the evening's topic. Ask your guests questions and listen to their answers and comment.Interest is a wonderful distraction from pain.

For the long winter season, plan regular achievable exercise either indoors or close to home. Another idea is to plan a winter exercise program at your home with friends. Invite two or three neighbours to come weekly to your home to practice yoga with an instructional DVD. For outdoor work, rake the leaves, but set the timer for 20 minutes and leave when it goes off so you are not in excruciating pain the next day from working too long. When you need rest, take it and drink plenty of water.

When you feel low, just put a chair and a blanket on the porch and enjoy the sun and fall colours. The key is to not only to pace yourself but to keep going, even if you are taking baby steps.

Tuesday, June 10, 2008

Fibro means never having to say you can do it all

The sun is out, the pressure is high and my overall body pain is low. Fatigue is not a factor, as I had a very good sleep. So the challenge? How to do the day, without over doing it. People with fibromyalgia may know what I mean.

Studies have shown that a lot of people who have fibromyalgia were A-type personalities in their past lives. All that lying around in pain, watching TV or being so fatigued that you just stare at the ceiling, or you take long hot Epsom salt baths, or you exercise gently -- all these activites time. A lot of time. Fibroites start to feel useless in other areas of their lives, as family, household, or career tasks mount.

So what do I do when I have a good day? Go at those chores whole hog and do catch up, right? Wrong. That type of behaviour will only cause a flareup the following day, which may put you out of commission for an even longer period. Chronic illness means never having to say you can do it all! It means not feeling guilty or unworthy about your new approach to daily life.

The key to long term pain management is to pace yourself, deal with priorities, and if necessary, look past the less pressing chores or ask for help with them. If you can afford it, hire a Molly Maid or an assistant. If your income is limited, create a closet or drawer, to stash less urgent problems. Date things with a post-it note. and do them in order of priority. Make your health your number one priority!
MOORE COMMUNICATIONS
Historical Research Services

Highest Standards

Dawna D. Moore, M.F.A., M.A. and PhD candidate

E-mail: DawnaMoore7@gmail.com
Telephone: 613-569-8277
Fax: Attn.: D.Moore, 613-233-144736
Henderson Avenue, Ottawa K1N 7P1



Research subject areas:

Visual Image Research

Family Genealogy Research

Canadian History Research, including

Women's History an the History of Medicine, Science, and Technology

Dawna Gallagher Moore's past clients include:
  1. The Office of the Governor General
  2. Scholastic Publishing
  3. Formac Publishing

Research Rates: available upon request


Tuesday, June 3, 2008

Curriculum Vitae

Dawna Moore, M.F.A., M.A.
Doctoral Candidate
Canadian Social History
Department of History, University of Ottawa
155 Seraphin Marion
Ottawa, Ontario, Canada

EDUCATION
Doctoral Program in Canadian History Ottawa, 2006-in process
MA Carleton University, (Canadian Studies, with distinction) 1997
MFA Nova Scotia College of Art & Design, 1991
BFA Nova Scotia College of Art & Design (minor in Art History), and Museum School, Boston, 1985
Arts Administration Training Program, Banff Centre for Cultural Management, 1990

AWARDS
2006 Merit Award, Library and Archives Canada
2005 University Of Ottawa Doctoral Studies Admission Scholarship
1994 Epstein Scholarship for Outstanding Graduate Student
1988 B Grant, The Canada Council
1987 Project Grant, Canada Council
1986 Project Grant, The Canada Council
1986 Brucebo Fine Arts Scholarship, Canadian-Scandinavian Foundation
1986 Travel Grant, N.S.C.A.D. Visiting Artists Committee
1984 Ronald J. MacAdam Scholarship for Excellence
1987 Nova Scotia Dept. of Culture Travel Grant

Publications
Nova Scotia Collects: Lyrical Abstraction. Halifax: Art Gallery of Nova Scotia, 1994.

Doctoral Thesis Topic
Brewers, Bakers, Shopkeepers, and Church Ladies: Toronto Philanthropists 1850-1920

Masters Thesis
Bringing Art to the People: A Biography of Norah McCullough. Researched Canadian cultural history 1920s-1960s, using primary source documents. Received distinction for research; work recommended for publication. Advisor: Prof. Natalie Luckyj, Art History, Carleton University.

Teaching Experience
Lecturer
Re‑reading Nature, Nova Scotia College of Art & Design, (1992)
This art history course, explored the meaning of images of nature in Western art, from the Classical period to contemporary period. I researched, developed and taught curriculae, which included, lecturing weekly, researching and writing lectures, exams and reading lists, and marking and grading.

Reading Landscape, Nova Scotia College of Art & Design, (1991)
This art history seminar was similar to above. Responsibilities included: researching, lecturingand leading discussions on philosophical and religious concepts and historical circumstances that influenced art of specific periods and places. Art discussed included Roman wall paintings, Dutch, English, and Canadian landscape painting, and post‑modern installations.

Continuing Education, Nova Scotia College of Art & Design: Landscape Painting Workshop, (1994), Painting Workshop, (1993), Watercolour 1, (1993); Illustration, (1987).

Teaching Assistant

Medieval History 500-1500, University of Ottawa, Winter (2007)
This elective history course, taught by Dr. Thomas Boogaart, introduced students to the Medieval period. As sole Teaching Assistant, I graded 85 students on a major assignment and both their midterm and final exams.

Making Canada, University of Ottawa, Fall (2006)
This first year history course, taught by Prof. Jeffrey Keshen, introduced students to the to pre- and post-confederation Canadian history. As a Teaching Assistant, I graded 40 students on their essay assignments and midterm exams.

Art as Visual Communication, Carleton University, Winter (1995)
This art history course, taught by Eva Major-Meredith, Library and Archives Canada, now of the Portrait Gallery, introduced students to the language of visual description. I taught two tutorial seminars per week with a group of twenty‑five students in each class, gave lectures and slide presentations, and marked assignments, and awarded final grades.

Canadian Studies, Carleton University, (1993)
This second year course included a cultural studies component. As a TA, I prepared and led tutorial seminars, advised distance-learning students, marked exams and essays, and awarded final grades.

Nova Scotia College of Art & Design: Painting III, (1992), Intermediate Painting, (1990), Fine Arts Foundation Studies, (1989).

WRITING / EDITING
Writer/Editor. Department of National Defence, Ministerial Correspondence.
Writer/Editor. Status of Women Canada, Ministerial Correspondence. 1998-1999, 2000.
Editor. Med-Eng Systems Inc. Design, Development, and Evaluation of the Foot Protection System: Final Report. Ottawa: January 2001.
Editor. Graham Metson. Wartime Memories. Multi-media narrative project.
Index Editor. Henighan, Thomas. Brian W. Aldiss. New York: Twayne, 2000.
Editor. ISSI Intercultural Systems/Systéms Research, 1998; The Canadian Guide to Working and Living Overseas. 1997.
Copy Editor. Aly Shady, Dr. Mohamed El-Moattassem, Dr. Mahmoud Abdu-Zeid, Abdel Karim Afifi eds. The River Nile in Egypt. forward by M. Hosni Mubarak. Ottawa: CIDA, 1996.
Copy Editor. Rajasthan Subsurface Drainage Project, CIDA.
Editor. Healing Journeys, CD-ROM Magazine, GP Communications, Halifax,1997-1999.
Publicist. Dalhousie University Art Gallery. Responsible for gallery publicity materials: writing, editing, proofreading, arranging media interviews, press releases, backgrounder notes, etc.
Publicist. The Nova Scotia Coalition on Arts and Culture. Coordinated 15 province-wide public forums to discuss the need for a provincial arts council.